Our Impact

Our Doctors and Researchers

Michael Ortiz, MD
Clinical Director, Rare Tumors Program, Memorial Sloan Kettering Cancer Center 

Project: Clinical Translation of an Exportin 1 (XPO1) Dependency in Select Pediatric Solid Tumors

Utilizing a novel tumor RNA analysis pipeline, we recently discovered that Wilms and rhabdoid tumors, two childhood kidney tumors, are unexpectedly dependent upon XPO1, a nuclear pore that pumps tumor suppressors out of the nucleus thereby inhibiting their function.  We further showed that blocking XPO1, with a drug called Selinexor, was an effective strategy to shrink Wilms and rhabdoid tumors that we had established in mice.  Selinexor had already completed a phase 1 study in children so we know the pediatric safety profile but a liquid formulation had not yet been available so younger children such as those with Wilms and rhabdoid tumors were not able to be evaluated.  This project supports a phase 2 clinical trial in which we are evaluating how effective that the liquid suspension form of Selinexor is in patients with relapsed Wilms tumor, rhabdoid tumor, and other tumors for which XPO1 inhibition appears promising including a rare sarcoma called Malignant Peripheral Nerve Sheath Tumors (MPNST).   We will enroll up to 9 young children as part of a safety assessment as well as up to 21 patients with Wilms tumor and up to 15 patients with other tumors as part of this study.  Support from this grant will enable us to open the trial at 8 sites across the United States.

Stergios Zacharoulis, MD
Associate Professor of Pediatrics, Director of Pediatric Neuro-Oncology, Director of CNS Drug Delivery Program, Columbia University College of Physicians and Surgeons

Project: Drug Delivery Program for Pediatric CNS Tumors: Blood Brain Barrier Disruption Using Novel Technologies

Columbia University’s program is developing two innovative methods—CED pumps and FUS sound waves—to deliver medicine directly to children’s brain tumors, aiming to improve treatment effectiveness while minimizing side effects.

Jessica W Tsai, MD, PhD
Assistant Professor of Pediatrics, Attending Physician in Pediatric Neuro Oncology, Children’s Hospital Los Angeles

Project: Defining the Spatial Architecture of Atypical Teratoid Rhabdoid Tumors

This project uses advanced mapping of ATRT tumors to understand how different cells function and interact, with the goal of developing safer, more precise treatments for young children.

Sarah Richman, MD, PhD
Assistant Professor of Pediatrics, Attending Physician, Children’s Hospital Los Angeles

Project: The Role of Neural Cell Adhesion Molecule (NCAM) in the Recognition and Killing of Tumor by CAR T Cells

This research tests whether the NCAM molecule can boost CAR T cell recognition and attack of solid pediatric tumors like neuroblastoma, aiming to make this therapy more effective for children.

James Ferrara, MD, DSc
Professor and Director, BMT Translational Research Center, Icahn School of Medicine at Mount Sinai

Project: Infrastructure Support for Pediatric Graft-Versus-Host Disease Research at Mount Sinai

This funding request supports ongoing research using the MAP blood test to guide safer, more personalized steroid treatment for children with graft-versus-host disease after bone marrow transplants.

Oren Becher, MD
Chief, The Jack Martin Fund Division of Pediatric Hematology-Oncology, Steven Ravitch Chair in Pediatric Hematology-Oncology, Professor of Pediatrics and Oncological Sciences, Icahn School of Medicine at Mount Sinai

Project: Moving Closer to Establishing an Animal Model of Posterior Fossa A Ependymoma, a Childhood Brain Cancer

This study aims to create a better animal model of Posterior Fossa A ependymoma by testing whether the genes p73 and IGF2 drive tumor formation, with the goal of uncovering disease mechanisms and guiding new treatments.

Mark Yarmarkovich, PhD
Perlmutter Cancer Center Assistant Professor, Department of Pathology, NYU Langone Health

Project: Peptide-Centric Chimeric Antigen Receptor (PC-CAR) T Cells for Therapy-Resistant Rhabdomyosarcoma

This project uses immunopeptidomics to identify unique tumor markers in therapy-resistant rhabdomyosarcoma and develop targeted CAR T cell therapies to improve treatment and overcome resistance.

Jaap Jan Boelens, MD, PhD
Chief, Transplantation and Cellular Therapies, Memorial Sloan Kettering Cancer Center

Project: Early Immune Reconstitution in Pediatric and Young Adult Hematopoietic Cell Transplantation: Unraveling the Role of Dendritic Cells and Tregs in AGVHD

This study investigates how interactions between dendritic cells and regulatory T cells influence graft-versus-host disease after pediatric stem cell transplants, with the goal of improving personalized treatments and outcomes.

Alice Lee, MD
Assistant Professor of Pediatrics, Montefiore Medical Center

Project: Pediatric Early Phase Clinical Trials Program at Montefiore Medical Center

The Pediatric Early Phase Clinical Trials Program at Montefiore, expands access to innovative cancer therapies for underserved children by conducting early-phase studies, building trial capacity, and fostering research partnerships.

Elizabeth A Raetz, MD
KiDS of NYU Foundation Professor of Pediatrics, NYU Grossman School of Medicine

Project: The Role of Aneuploidy in Childhood B Acute Lymphoblastic Leukemia

This study develops lab models of hyperdiploid ALL to uncover how extra chromosomes influence cancer behavior and treatment response, aiming to guide better therapies for patients lacking these favorable traits.

William Carrol, MD
Julie and Edward J. Minskoff Professor of Pediatrics, NYU Grossman School of Medicine

Project: The Role of Aneuploidy in Childhood B Acute Lymphoblastic Leukemia

This study develops lab models of hyperdiploid ALL to uncover how extra chromosomes influence cancer behavior and treatment response, aiming to guide better therapies for patients lacking these favorable traits.

Mitchell S. Cairo, MD
Chief, Pediatric Hematology, Oncology and Stem Cell Transplantation; Director, Children and Adolescent Cancer and Blood Diseases Center; Director, WMC Cancer Center, New York Medical College

Project: Targeted Humoral and Cellular Therapy for Childhood, Adolescent and Yound Adult Classical Hodgkin Lymphoma

This project tests antibody-based therapies with reduced-toxicity chemotherapy and develops gene-edited immune cell treatments to improve outcomes and reduce long-term harm for children and young adults with classical Hodgkin Lymphoma.

Jennifer A. Oberg, EdD MA
Assistant Professor of Pediatrics, Columbia University College of Physicians and Surgeons

Project: Columbia University PCF Developmental Therapeutics Program

The PCF Developmental Therapeutics Program at Columbia University develops and tests innovative treatments for children with incurable cancer through basic research, clinical trials, and personalized tumor profiling, and seeks continued support to sustain its staff and genomic technologies.

Dawn S. Chandler, Ph.D.
Professor of Pediatrics at The Ohio State University Comprehensive Cancer Center

Project: Target Specific Delivery of Optimized RNA Therapeutics for the Treatment of Pediatric Sarcomas

This project develops a targeted delivery system to restore the cancer-fighting protein p53 by blocking MDM2, aiming to improve treatment and survival for children with aggressive rhabdomyosarcoma.

John Levine, MD, MS
Professor of Pediatrics and Medicine, Icahn School of Medicine at Mount Sinai

Project: Infrastructure Support for Pediatric Graft-Versus-Host Disease Research at Mount Sinai

This funding request supports ongoing research using the MAP blood test to guide safer, more personalized steroid treatment for children with graft-versus-host disease after bone marrow transplants.

Maria Castro, PhD
R.C. Schneider Professor of Neurosurgery, and Professor of Cell and Developmental Biology, University of Michigan Medical School

Project: Investigating Mechanisms of Recurrence after Immune Gene Therapy in G34-Mutant Pediatric High-Grade Glioma

This study investigates why G34-mutant childhood brain tumors often recur after treatment, aiming to guide immune-based combination therapies that improve long-term survival.

Sarah K. Tasian, MD
Associate Professor of Pediatrics, Chief, Hematologic Malignancies Program, Joshua Kahan Endowed Chair in Pediatric Leukemia Research, University of Pennsylvania Perelman School of Medicine, Division of Oncology and Center for Childhood Cancer Research, Children’s Hospital of Philadelphia 

Project: FLT3 Killer T Cell Immunotherapy for High-Risk Pediatric Leukemias

PCF is excited to announce that our grant will help to fund a planned first-in-human phase 1 clinical trial led by Sarah K. Tasian, MD, which will use a new immunotherapy to target the FLT3 receptor protein in high-risk pediatric leukemias.

Read press release here

Chemotherapy fails many patients with high-risk leukemias, particularly infants with acute lymphoblastic leukemia (ALL) and children with acute myeloid leukemia (AML) with high-risk genetic alterations who have poor long-term survival. Recent CAR T-cell therapies targeting the CD19 protein on ALL cells have been very effective in overcoming chemotherapy resistance and can now cure many children with relapsed ALL. However, some leukemias have learned to outsmart these therapies in various ways. One problem is that infant and childhood ALL with KMT2A genetic rearrangements are more likely to change into AML after CD19 CAR T-cell immunotherapy, which usually makes them incurable.

To date, it has been challenging to develop successful immunotherapies for pediatric AML. To address this problem, CHOP’s collaborative research team, led by Dr. Tasian and her colleague Dr. Terry Fry at Children’s Hospital Colorado, developed and tested a new CAR T-cell immunotherapy targeting an alternative protein called FLT3 that occurs at high levels in a type of AML and in infant ALL. In the laboratory, FLT3 CAR T cells were very effective at attacking and killing both AML and ALL cells in both in vitro and in vivo models of the disease. Remarkably, FLT3 CAR T cells eradicated both KMT2A-rearragned ALL and ALL that had turned into fatal AML after CD19 CAR T-cell treatment of the patient.

“Based upon our promising lab results, we aim to test FLT3 CAR T cells in pediatric patients through a first-in-human/child phase 1 clinical trial,” said Sarah K. Tasian, MD, a pediatric oncologist and Chief of the Hematologic Malignancies Program at CHOP. “Our research team has a strong track record of bench-to-bedside translation of CAR T cells for high-risk pediatric leukemias and is uniquely poised to undertake this challenge. Because of the funding provided by Pediatric Cancer Foundation, we can now work to translate our FLT3 CAR T-cell immunotherapy from promising results in the laboratory to the clinic. We hope that this clinical trial will have significant potential to credential a promising new immunotherapy against a shared target in two major types of high-risk childhood leukemias.”

The Cancer Immunotherapy Program at CHOP has revolutionized the care and the cure of children with relapsed/refractory B-cell ALL via its pioneering investigation of CD19-targeted killer T cells (CART19) that led to first-in-child FDA approval of the tisagenlecleucel cell therapy product in 2017. The program has continued to change and set new paradigms through investigation of additional CAR T cell therapies for children with B-cell ALL or lymphoma, AML, T-ALL, and neuroblastoma.

To find out more information visit:  chop.edu/centers-programs/cancer-immunotherapy-program.

Evan Weber, PhD
CHOP Division of Oncology, Assistant Professor of Pediatrics at the Perelman School of Medicine at University of Pennsylvania. 

Project: Enhancing CAR T Cell Persistence Through Memory Reprogramming

Dr. Weber’s research is focused on developing methods to enhance human CAR-T cell therapies for pediatric cancer by endowing T cells with improved durability and exhaustion resistance. His laboratory specializes in modeling and interrogating CAR-T cell exhaustion, a biological process that limits CAR-T cell efficacy in patients. Dr. Weber’s research will uncover molecular programs that drive human CAR-T cell dysfunction, identify targets for therapeutic intervention, and inform universal strategies that improve CAR-T cell efficacy in cancer patients. Poor CAR-T cell persistence is a major barrier to progress for CAR-T Cell therapy and limits clinical responses in children. The overall goals of his research are to identify the molecular mechanisms that govern CAR-T cell behavior – both good and bad – and leverage those insights to enhance T cell fitness for CAR-T cell therapy targeting pediatric malignancies. 

Gurcharanjeet (Bonnie) Kaur, MD, FAAP
Assistant Professor of Neurology and Pediatrics
Pediatric Neurologist, Neuro-oncologist
Director, Columbia NF Center
Columbia University Irving Medical Center

Project: Strengthening bench-to-bedside research initiatives at the Comprehensive Neurofibromatosis Center at Columbia University

Phase 0/1 study examining the use of non-invasive focused ultrasound (FUS) with oral selumetinib administration in children with progressive inoperable plexiform neurofibroma

Neurofibromatosis type 1 (NF1) is a rare and under-researched cancer predisposition syndrome that affects 1 in 3,000 people worldwide. Patients with NF1 require monitoring for the development of skin, peripheral, and central nervous system tumors. Plexiform neurofibroma (PNF) is a benign tumor that can grow within a nerve anywhere in the body and seen in about 30-50% of NF1 patients with an approximately 10-15% chance to develop into a malignant peripheral nerve sheath tumor (MPNST), a type of sarcoma. Selumetinib, a MEK-inhibitor is FDA-approved for patients with progressively growing PNFs which can’t be safely removed by surgery. Focused Ultrasound (FUS) has been successfully used to open the blood-brain barrier allowing drugs entering the brain in higher concentrations. We plan to combine FUS with selumetinib to achieve better drug penetration into the PNF which could decrease the systemic side effects of selumetinib and improve quality of life by alleviating the need for surgery.

Stavroula Sofou, PhD
Professor , Director of the PhD Program
Chemical and Biomolecular Engineering
Johns Hopkins University
 

Project: ALPHA-PARTICLE RADIO-IMMUNOTHERAPY FOR PEDIATRIC GLIOBLASTOMA

Researchers created a low-dose radiation treatment that boosts immune response against tumors, and after success in mice, they plan to test it in pet dogs with brain tumors as a step toward human trials.

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